More research is being done in the rare disease space than ever before, yet 95% of rare diseases do not have an FDA-approved treatment. Bringing new treatments – and cures – to this population is possible due in part to you – the medical innovators of the world.

To ensure that trials are designed safely and effectively, involving patients as well as caregivers early in the process is essential.

This Rare Disease Day, we invite you to hear directly from the patients themselves.

Join us on February 28, to hear:

  • The challenges with getting diagnosed & finding a treatment
  • Why self-advocacy and online communities are critical
  • What the industry can do to ensure their clinical trials will be as patient-friendly as possible

Show your stripes and register now. We encourage you to share this webinar with your colleagues and friends, and if you are unable to attend the live program, we’ll send you the recording following the discussion.

Hosted by:

Chris Shoemaker – Director, Clinical Site, Hospital & University Team, Greenphire


Thomas Smith – Independent Patient Consultant
Joe Garcia – Product Manager, Data Services, Greenphire
Emily Clifford – Senior Project Manager, CISCRP

Reserve Your Seat

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